The substantial burden of systemic lupus erythematosus on the productivity and careers of patients: a European patient-driven online survey.

ABSTRACT:

Objective

The objective of this study was to explore the burden of SLE and its effect on patients' lives.

Methods

The Lupus European Online (LEO) survey included patient-designed questions on demographics, SLE diagnosis, and the impact of SLE on careers. Three SLE-specific patient-reported outcome (PRO) questionnaires were also completed: the Lupus Quality of Life (LupusQoL), the Fatigue Severity Scale (FSS), and the Work Productivity and Activity Impairment (WPAI)-Lupus v2.0. The survey was available online in five languages from May through August 2010. All self-identified SLE participants were eligible to respond. Survey results were analysed using descriptive statistics. Multivariate linear regression explored factors contributing to impaired productivity.

Results

SUBMITTER: Gordon C 

PROVIDER: S-EPMC3828514 | biostudies-literature | 2013 Dec

REPOSITORIES: biostudies-literature