Managing personal health information in distributed research network environments.

ABSTRACT:

Background

Studying rare outcomes, new interventions and diverse populations often requires collaborations across multiple health research partners. However, transferring healthcare research data from one institution to another can increase the risk of data privacy and security breaches.

Methods

A working group of multi-site research programmers evaluated the need for tools to support data security and data privacy. The group determined that data privacy support tools should: 1) allow for a range of allowable Protected Health Information (PHI); 2) clearly identify what type of data should be protected under the Health Insurance Portability and Accountability Act (HIPAA); and 3) help analysts identify which protected health information data elements are allowable in a given p

SUBMITTER: Bredfeldt CE 

PROVIDER: S-EPMC3851487 | biostudies-literature | 2013 Oct

REPOSITORIES: biostudies-literature