Living with Kallmann Syndrome - Analysis of Subjective Experience Reports from Women.

ABSTRACT: Five women were questioned on their experiences with Kallmann Syndrome (KS) in thematically focused, open interviews. This investigation complements the study of the experiences of men with KS 1. The results show that the consequences and pressures of KS extend beyond the somato-medical field and that those affected are also burdened by mental and psycho-social impacts. The pressures experienced by those affected include a distorted body image resulting from the lack of physical development, which in turn leads to difficulties in developing a healthy feeling of self-worth. Furthermore, particular attention should be paid to the influence of hormone therapy on mood and libido during medical treatment. Some of the affected women reported experiencing depressive moods and low libido, and pres

SUBMITTER: Hofmann J 

PROVIDER: S-EPMC3862043 | biostudies-literature | 2013 Nov

REPOSITORIES: biostudies-literature