The burden of inflammatory bowel disease: a patient-reported qualitative analysis and development of a conceptual model.

ABSTRACT:

Background

The aim of this study was to describe the impacts of inflammatory bowel disease (IBD) from the patients' perspective and to inform the development of a conceptual model.

Methods

Focus groups and one-on-one interviews were undertaken in adult patients with IBD. Transcripts from the focus groups and interviews were analyzed to identify themes and links between themes, assisted by qualitative data software MaxQDA. Themes from the qualitative research were supplemented with those reported in the literature and concepts included in IBD-specific patient-reported outcome measures.

Results

Twenty-seven patients participated. Key physical symptoms included pain, bowel-related symptoms such as frequency, urgency, incontinence, diarrhea, passing blood, and systemic sy

SUBMITTER: Devlen J 

PROVIDER: S-EPMC3932523 | biostudies-literature | 2014 Mar

REPOSITORIES: biostudies-literature