Genomics education for the public: perspectives of genomic researchers and ELSI advisors.

ABSTRACT:

Aims

For more than two decades genomic education of the public has been a significant challenge. As genomic information becomes integrated into daily life and routine clinical care, the need for public education is even more critical. We conducted a pilot study to learn how genomic researchers and ethical, legal, and social implications advisors who were affiliated with large-scale genomic variation studies have approached the issue of educating the public about genomics.

Methods/results

Semi-structured telephone interviews were conducted with researchers and advisors associated with the SNP/HAPMAP studies and the Cancer Genome Atlas Study. Respondents described approach(es) associated with educating the public about their study. Interviews were audio-recorded, transcribed,

SUBMITTER: Dressler LG 

PROVIDER: S-EPMC3948600 | biostudies-literature | 2014 Mar

REPOSITORIES: biostudies-literature