Patient-reported quality of life outcomes for children with serious congenital heart defects.

ABSTRACT:

Objective

To compare patient-reported, health-related quality of life (QoL) for children with serious congenital heart defects (CHDs) and unaffected classmates and to investigate the demographic and clinical factors influencing QoL.

Design

Retrospective cohort study.

Setting

UK National Health Service.

Patients

UK-wide cohort of children with serious CHDs aged 10-14 years requiring cardiac intervention in the first year of life in one of 17 UK paediatric cardiac surgical centres operating during 1992-1995. A comparison group of classmates of similar age and sex was recruited.

Main outcome measures

Child self-report of health-related QoL scores (Pediatric Quality of Life Inventory, PedsQL) and parental report of schooling and social activities.

Results

SUBMITTER: Knowles RL 

PROVIDER: S-EPMC3995241 | biostudies-literature | 2014 May

REPOSITORIES: biostudies-literature