Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents.

ABSTRACT:

Objectives

To identify key health outcomes, beyond morbidity and mortality, regarded as important in children and young people with neurodisability, and their parents.

Design

Qualitative research incorporating a thematic analysis of the data supported by the Framework Approach; the International Classification of Functioning, Disability and Health (ICF) provided a theoretical foundation.

Setting

The study was conducted in community settings.

Participants

Participants were 54 children and young people with neurodisability: 50 participated in focus groups, and 4 in interviews; 53 parents participated: 47 in focus groups and 6 in interviews. Children/young people and parents were recruited through different networks, and were not related.

Results

Children/y

SUBMITTER: Allard A 

PROVIDER: S-EPMC3996811 | biostudies-literature | 2014 Apr

REPOSITORIES: biostudies-literature