The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers.

ABSTRACT:

Objectives

To develop a model of care coordination for patients living with advanced progressive illness and their unpaid caregivers, and to understand their perspective regarding care coordination.

Design

A prospective longitudinal, multi-perspective qualitative study involving a case-study approach.

Methods

Serial in-depth interviews were conducted, transcribed verbatim and then analyzed through open and axial coding in order to construct categories for three cases (sites). This was followed by continued thematic analysis to identify underlying conceptual coherence across all cases in order to produce one coherent care coordination model.

Participants

Fifty-six purposively sampled patients and 27 case-linked unpaid caregivers.

Settings

Three cases from

SUBMITTER: Daveson BA 

PROVIDER: S-EPMC4008426 | biostudies-literature | 2014

REPOSITORIES: biostudies-literature