Living with pulmonary hypertension: unique insights from an international ethnographic study.

ABSTRACT:

Objectives

To better understand the patient's perspective of pulmonary hypertension (PH), including the impact of living with PH, disease management and treatment.

Design

This qualitative ethnographic study collected observational video footage, supplemented by field notes and patient diaries to assess the impact of PH on the patient's life.

Setting

Patients were observed and filmed in their home for up to 6 h, capturing the environment, interactions and activities of everyday life.

Participants

Patients with pulmonary arterial hypertension (PAH) or chronic thromboembolic PH who were receiving PAH-specific medication were recruited through healthcare professionals (HCPs) and patient associations in seven countries across four continents. Sampling was purposive

SUBMITTER: Kingman M 

PROVIDER: S-EPMC4024598 | biostudies-literature | 2014 May

REPOSITORIES: biostudies-literature