Clinical research data warehouse governance for distributed research networks in the USA: a systematic review of the literature.

ABSTRACT:

Objective

To review the published, peer-reviewed literature on clinical research data warehouse governance in distributed research networks (DRNs).

Materials and methods

Medline, PubMed, EMBASE, CINAHL, and INSPEC were searched for relevant documents published through July 31, 2013 using a systematic approach. Only documents relating to DRNs in the USA were included. Documents were analyzed using a classification framework consisting of 10 facets to identify themes.

Results

6641 documents were retrieved. After screening for duplicates and relevance, 38 were included in the final review. A peer-reviewed literature on data warehouse governance is emerging, but is still sparse. Peer-reviewed publications on UK research network governance were more prevalent, although not

SUBMITTER: Holmes JH 

PROVIDER: S-EPMC4078282 | biostudies-literature | 2014 Jul-Aug

REPOSITORIES: biostudies-literature