A cross-sectional questionnaire assessing patient and physician use of short-term prophylaxis for hereditary angioedema.

ABSTRACT:

Background

Current guidelines recommend short-term prophylaxis (STP) before invasive procedures to prevent hereditary angioedema (HAE) attacks; however, adherence to these guidelines may be variable because this indication lacks Food and Drug Administration approval in the United States.

Objective

To ascertain the STP experiences of patients with HAE and HAE-treating physicians.

Methods

Online questionnaires focusing on STP experiences were distributed by the US Hereditary Angioedema Association to the first 250 patients with HAE and to registered HAE-treating physicians. SAS 9.3 was used to perform descriptive statistics and to test the difference between patients who underwent procedures and those who did not using Pearson χ(2) test, Fisher exact test, and 2-sample

SUBMITTER: Nanda MK 

PROVIDER: S-EPMC4141470 | biostudies-literature | 2014 Aug

REPOSITORIES: biostudies-literature