Genetic literacy and patient perceptions of IBD testing utility and disease control: a randomized vignette study of genetic testing.

ABSTRACT:

Background

Findings from inflammatory bowel disease (IBD) genome-wide association studies are being translated clinically into prognostic and diagnostic indicators of disease. Yet, patient perception and understanding of these tests and their applicability to providing risk information is unclear. The goal of this study was to determine, using hypothetical scenarios, whether patients with IBD perceive genetic testing to be useful for risk assessment, whether genetic test results impact perceived control, and whether low genetic literacy may be a barrier to patient understanding of these tests.

Methods

Two hundred fifty seven patients with IBD from the Johns Hopkins gastroenterology clinics were randomized to receive a vignette depicting either a genetic testing scenario or a

SUBMITTER: Hooker GW 

PROVIDER: S-EPMC4141772 | biostudies-literature | 2014 May

REPOSITORIES: biostudies-literature