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ABSTRACT: Background
Charles Bonnet Syndrome (CBS) is widely considered a transient condition without adverse consequence, questioning the need for treatment. Yet, while this view may be true of the majority of people with CBS, it is recognised that some have negative experiences and outcomes. Here, we attempt to better understand negative outcome CBS and the factors that influence it.Methods
4000 members of the Macular Society were sent a structured questionnaire covering the phenomenology of CBS, its prognosis and impact, symptom reporting, patient knowledge and sources of information.Results
492 people with CBS were identified. Kaplan-Meier analysis suggested 75% had CBS for 5 years or more. Thirty-two per cent had negative outcome. Factors associated with negative outcome
SUBMITTER: Cox TM
PROVIDER: S-EPMC4145458 | biostudies-literature | 2014 Sep
REPOSITORIES: biostudies-literature