How do Individuals with Complete Androgen Insensitivity Syndrome, Mayer-Rokitansky-Kuster-Hauser Syndrome or Polycystic Ovary Syndrome Experience Contact to Other Affected Persons?

ABSTRACT: Persons with different sex characteristics may suffer from a feeling of being "different" or "not normal". In this study, persons with one of 3 diagnoses (complete androgen insensitivity syndrome [CAIS]; Mayer-Rokitansky-Küster-Hauser syndrome [MRKHS], polycystic ovary syndrome [PCOS]) were asked whether they had contact to other affected persons and how they assessed this contact. The correlation between contact and psychological distress was evaluated. Material and Methods: Information on contacts to other affected individuals was obtained using a written questionnaire. Psychological distress was measured using the German version of the BSI (Brief Symptom Inventory). Results: Data from 11 individuals with CAIS, 49 women with MRKHS and 55 women with PCOS was analysed. The fr

SUBMITTER: Krupp K 

PROVIDER: S-EPMC4168324 | biostudies-literature | 2012 Nov

REPOSITORIES: biostudies-literature