Unmet needs of people with severe multiple sclerosis and their carers: qualitative findings for a home-based intervention.

ABSTRACT:

Background

Few data on services for people with severe multiple sclerosis (MS) are available. The Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) developed a home palliative care program for MS patients and carers, preceded by a literature review and qualitative study (here reported).

Objective

To identify unmet needs of people with severe MS living at home by qualitative research involving key stakeholders, and theorize broad areas of intervention to meet those needs.

Method

Data were collected from: at least 10 personal interviews with adults with severe MS (primary/secondary progressive, EDSS≥8.0); three focus group meetings (FGs) of carers of people with severe MS; and two FGs of health professionals (HPs). Grounded theory guided the ana

SUBMITTER: Borreani C 

PROVIDER: S-EPMC4186842 | biostudies-literature | 2014

REPOSITORIES: biostudies-literature