Public preferences for the return of research results in genetic research: a conjoint analysis.

ABSTRACT:

Purpose

Recent policies specifying criteria about which individual research results to return leave considerable discretion to researchers. This study investigated the types of results that the public wants when participating in genetic research and whether preferences differ based on willingness to participate.

Methods

A representative survey of US adults used conjoint analysis to measure priorities among eight principles of a results policy for a proposed large-cohort study. Policy preferences were measured using 12 tasks in which respondents chose between two groupings of the policy principles. Stratified analysis compared those self-identified as likely or unlikely to participate in genomic research.

Results

Of 1,515 respondents, 56% would participate in the propo

SUBMITTER: Murphy Bollinger J 

PROVIDER: S-EPMC4241188 | biostudies-literature | 2014 Dec

REPOSITORIES: biostudies-literature