World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project: II. Clinical and covariate phenotype data collection in endometriosis research.

ABSTRACT:

Objective

To harmonize the collection of nonsurgical clinical and epidemiologic data relevant to endometriosis research, allowing large-scale collaboration.

Design

An international collaboration involving 34 clinical/academic centers and three industry collaborators from 16 countries on five continents.

Setting

In 2013, two workshops followed by global consultation, bringing together 54 leaders in endometriosis research.

Patients

None.

Intervention(s)

Development of a self-administered endometriosis patient questionnaire (EPQ), based on [1] systematic comparison of questionnaires from eight centers that collect data from endometriosis cases (and controls/comparison women) on a medium to large scale (publication on >100 cases); [2] literature evidence; an

SUBMITTER: Vitonis AF 

PROVIDER: S-EPMC4252538 | biostudies-literature | 2014 Nov

REPOSITORIES: biostudies-literature