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Consumer familiarity, perspectives and expected value of personalized medicine with a focus on applications in oncology.


ABSTRACT:

Aims

Knowledge of consumer perspectives of personalized medicine (PM) is limited. Our study assessed consumer perspectives of PM, with a focus on oncology care, to inform industry, clinician and payer stakeholders' programs and policy.

Materials & methods

A nationally representative survey of 602 US consumers' ≥30 years old explored familiarity, perspectives and expected value of PM.

Results

Most (73%) respondents have not heard of 'personalized medicine,' though after understanding the term most (95%) expect PM to have a positive beneft. Consumer's willingness to pay is associated with products' impact on survival, rather than predicting disease risk. If testing indicates consumers are not candidates for oncology therapies, most (84%) would seek a second opinion or want therapy anyway.

Conclusions

Understanding heterogeneity in consumer perspectives of PM can inform program and policy development.

SUBMITTER: Garfeld S 

PROVIDER: S-EPMC4303575 | biostudies-literature | 2015 Jan

REPOSITORIES: biostudies-literature

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Consumer familiarity, perspectives and expected value of personalized medicine with a focus on applications in oncology.

Garfeld Susan S   Douglas Michael P MP   MacDonald Karen V KV   Marshall Deborah A DA   Phillips Kathryn A KA  

Personalized medicine 20150101 1


<h4>Aims</h4>Knowledge of consumer perspectives of personalized medicine (PM) is limited. Our study assessed consumer perspectives of PM, with a focus on oncology care, to inform industry, clinician and payer stakeholders' programs and policy.<h4>Materials & methods</h4>A nationally representative survey of 602 US consumers' ≥30 years old explored familiarity, perspectives and expected value of PM.<h4>Results</h4>Most (73%) respondents have not heard of 'personalized medicine,' though after unde  ...[more]

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