Initial development and psychometric testing of an instrument to measure the quality of children's end-of-life care.

ABSTRACT:

Background

The field of pediatric palliative care is hindered by the lack of a well-defined, reliable, and valid method for measuring the quality of end-of-life care.

Methods

The study purpose was to develop and test an instrument to measure mothers' perspectives on the quality of care received before, at the time of, and following a child's death. In Phase 1, key components of quality end-of-life care for children were synthesized through a comprehensive review of research literature. These key components were validated in Phase 2 and then extended through focus groups with bereaved parents. In Phase 3, items were developed to assess structures, processes, and outcomes of quality end-of-life care then tested for content and face validity with health professionals. Cognitive

SUBMITTER: Widger K 

PROVIDER: S-EPMC4305389 | biostudies-literature | 2015

REPOSITORIES: biostudies-literature