Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration.

ABSTRACT:

Background

Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumatic diseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likely be applicable to children with systemic inflammatory diseases.

Findings

We adapted Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY©) to Simple Measure of Impact of Illness in Youngsters (SMILY©-Illness) and had it reviewed by pediatric rheumatologists for

SUBMITTER: Moorthy LN 

PROVIDER: S-EPMC4334772 | biostudies-literature | 2014

REPOSITORIES: biostudies-literature