Measuring quality of life in muscular dystrophy.

ABSTRACT:

Objectives

The objectives of this study were to develop a conceptual model of quality of life (QOL) in muscular dystrophies (MDs) and review existing QOL measures for use in the MD population.

Methods

Our model for QOL among individuals with MD was developed based on a modified Delphi process, literature review, and input from patients and patient advocacy organizations. Scales that have been used to measure QOL among patients with MD were identified through a literature review and evaluated using the COSMIN (Consensus-Based Standards for the Selection of Health Measurement Instruments) checklist.

Results

The Comprehensive Model of QOL in MD (CMQM) captures 3 broad domains of QOL (physical, psychological, and social), includes factors influencing self-reported QOL (di

SUBMITTER: Bann CM 

PROVIDER: S-EPMC4352095 | biostudies-literature | 2015 Mar

REPOSITORIES: biostudies-literature