Treatment adherence and transitioning youth in pediatric multiple sclerosis.

ABSTRACT:

Background

Transitioning youth with multiple sclerosis (MS) represent a vulnerable group to potentially poor outcomes. It is unknown how pediatric MS patients transition into adult care.

Objectives

To describe self-management skills that include adherence to disease-modifying therapies, quality of life measures, illness perception, transition readiness and healthcare skills assessments in patients with pediatric MS and associations with clinical and cognitive outcomes.

Methods

This is a prospective cross-sectional study at the pediatric MS center and transitional MS clinic at the University of California, San Francisco. Patients and one of their parents completed validated surveys for self-management skills. Non-adherence is defined as not taking their medication more

SUBMITTER: Lulu S 

PROVIDER: S-EPMC4361811 | biostudies-literature | 2014 Nov

REPOSITORIES: biostudies-literature