Public perceptions of presymptomatic testing for Alzheimer disease.

ABSTRACT:

Objective

To explore the self-expressed desire for, envisioned reaction to, and basic understanding of presymptomatic Alzheimer disease (AD)-related genetic and biomarker tests.

Patients and methods

The Alzheimer's Prevention Registry is an online community of people at least 18 years of age who are interested in AD prevention research for purely informational purposes or to be considered for possible research participation in future studies. Information about presymptomatic testing and an online multiple choice format survey were posted from November 1, 2012, through June 20, 2013, on the registry website.

Results

Of 4036 respondents, 80.8% (3195/3952) wanted genetic testing if paid by insurance and 58.7% (2261/3851) if it would cost them at least $100. A total of 80

SUBMITTER: Caselli RJ 

PROVIDER: S-EPMC4369785 | biostudies-literature | 2014 Oct

REPOSITORIES: biostudies-literature