Public trust in health information sharing: implications for biobanking and electronic health record systems.

ABSTRACT: Biobanks are made all the more valuable when the biological samples they hold can be linked to health information collected in research, electronic health records, or public health practice. Public trust in such systems that share health information for research and health care practice is understudied. Our research examines characteristics of the general public that predict trust in a health system that includes researchers, health care providers, insurance companies and public health departments. We created a 119-item survey of predictors and attributes of system trust and fielded it using Amazon's MTurk system (n = 447). We found that seeing one's primary care provider, having a favorable view of data sharing and believing that data sharing will improve the quality of health care, as we

SUBMITTER: Platt J 

PROVIDER: S-EPMC4384055 | biostudies-literature | 2015 Feb

REPOSITORIES: biostudies-literature