PedsQL™ sickle cell disease module: feasibility, reliability, and validity.

ABSTRACT:

Background

Sickle cell disease (SCD) is an inherited chronic disease that is characterized by complications such as recurrent painful vaso-occlusive events that require frequent hospitalizations and contribute to early mortality. The objective of the study was to report on the initial measurement properties of the new PedsQL™ SCD Module for pediatric patient self-report ages 5-18 years and parent proxy-report for ages 2-18 years.

Procedure

The 43-item PedsQL™ SCD Module was completed in a multisite study by 243 pediatric patients with SCD and 313 parents. Participants also completed the PedsQL™ 4.0 Generic Core Scales and PedsQL™ Multidimensional Fatigue Scale.

Results

The PedsQL™ SCD Module Scales evidenced excellent feasibility, excellent reliability for the Total S

SUBMITTER: Panepinto JA 

PROVIDER: S-EPMC4412167 | biostudies-literature | 2013 Aug

REPOSITORIES: biostudies-literature