Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research.

ABSTRACT:

Background

Heart Healthy Lenoir is a transdisciplinary project aimed at creating long-term, sustainable approaches to reduce cardiovascular disease risk disparities in Lenoir County, North Carolina using a design spanning genomic analysis and clinical intervention. We hypothesized that residents of Lenoir County would be unfamiliar and mistrustful of genomic research, and therefore reluctant to participate; additionally, these feelings would be higher in African-Americans.

Methodology

To test our hypothesis, we conducted qualitative research using community-based participatory research principles to ensure our genomic research strategies addressed the needs, priorities, and concerns of the community. African-American (n = 19) and White (n = 16) adults in Lenoir County partic

SUBMITTER: Skinner HG 

PROVIDER: S-EPMC4418607 | biostudies-literature | 2015

REPOSITORIES: biostudies-literature