Using formative research to develop a counselor training program for newborn screening in Ghana.

ABSTRACT: Sickle cell disease (SCD), sickle cell trait (SCT) and related conditions are highly prevalent in sub-Saharan Africa. Despite the public health implications, there is limited understanding of the unique needs regarding establishing and implementing extensive screening for newborns and appropriate family counseling. We sought to gain understanding of community attitudes and beliefs about SCD/SCT from counselors and potential counselors in Ghana; obtain their input about goals for counseling following newborn screening; and obtain guidance about developing effective counselor education. Five focus groups with 32 health care providers and health educators from 9 of 10 regions in Ghana were conducted by trained facilitators according to a structured protocol. Qualitative data were coded and ca

SUBMITTER: Treadwell MJ 

PROVIDER: S-EPMC4501216 | biostudies-literature | 2015 Apr

REPOSITORIES: biostudies-literature