Population attitudes towards research use of health care registries: a population-based survey in Finland.

ABSTRACT:

Background

Register-based research can provide important and valuable contributions to public health research, but involves ethical issues concerning the balance of public health benefits and individual autonomy. This study aimed to describe the opinions of the Finnish public about these issues.

Methods

Mail survey questionnaire sent to a random sample of 1000 Finns.

Results

Participation proportion was 42%, with 258 women and 160 men. The majority of the participants (61%) were willing to provide their identifiable health information for research. Almost half of the participants (48%) would, nevertheless, like to be informed when their information is used. A third (30%) indicated no need for informed consent in register-based research, a similar proportion felt it sh

SUBMITTER: Eloranta K 

PROVIDER: S-EPMC4504396 | biostudies-literature | 2015 Jul

REPOSITORIES: biostudies-literature