Patients optimizing epilepsy management via an online community: the POEM Study.

ABSTRACT:

Objective

The study objective was to test whether engaging in an online patient community improves self-management and self-efficacy in veterans with epilepsy.

Methods

The study primary outcomes were validated questionnaires for self-management (Epilepsy Self-Management Scale [ESMS]) and self-efficacy (Epilepsy Self-Efficacy Scale [ESES]). Results were based on within-subject comparisons of pre- and postintervention survey responses of veterans with epilepsy engaging with the PatientsLikeMe platform for a period of at least 6 weeks. Analyses were based on both completer and intention-to-treat scenarios.

Results

Of 249 eligible participants enrolled, 92 individuals completed both surveys. Over 6 weeks, completers improved their epilepsy self-management (ESMS total scor

SUBMITTER: Hixson JD 

PROVIDER: S-EPMC4515038 | biostudies-literature | 2015 Jul

REPOSITORIES: biostudies-literature