Key stakeholders' perspectives on a Web-based advance care planning tool for advanced lung disease.

ABSTRACT:

Purpose

There is a paucity of scalable advance care planning strategies that achieve the diverse goals of patients, families, and clinicians. We convened key stakeholders to gain their perspectives on developing a Web-based advance care planning tool for lung disease.

Materials and methods

We conducted semistructured interviews with 50 stakeholders: 21 patients with lung disease, 18 surrogates, and 11 clinicians. Interviews explored stakeholders' desired content and design features of a Web-based advance care planning tool. Participants also rated the tool's acceptability and potential usefulness. We analyzed the interviews with modified grounded theory and validated themes through member checking.

Results

Stakeholders highly rated the acceptability (median, 5; interq

SUBMITTER: Chiarchiaro J 

PROVIDER: S-EPMC4628837 | biostudies-literature | 2015 Dec

REPOSITORIES: biostudies-literature