Caring Decisions: The Development of a Written Resource for Parents Facing End-of-Life Decisions.

ABSTRACT:

Background

Written resources in adult intensive care have been shown to benefit families facing end of life (EoL) decisions. There are few resources for parents making EoL decisions for their child and no existing resources addressing ethical issues. The Caring Decisions handbook and website were developed to fill these gaps.

Aim

We discuss the development of the resources, modification after reviewer feedback and findings from initial pilot implementation.

Design

A targeted literature review-to identify resources and factors that impact on parental EoL decision-making; development phase-guided by the literature and the researchers' expertise; consultation process-comprised a multi-disciplinary panel of experts and parents; pilot evaluation study-hard-copy handbook wa

SUBMITTER: Xafis V 

PROVIDER: S-EPMC4638203 | biostudies-literature | 2015 Nov

REPOSITORIES: biostudies-literature