Attitudes of Research Participants and the General Public Regarding Disclosure of Alzheimer Disease Research Results.

ABSTRACT:

Importance

Results of Alzheimer disease (AD) research assessments typically are not disclosed to participants. Recent research has suggested interest in disclosure, but, to our knowledge, few studies have accounted for awareness of potential benefits and limitations of disclosure.

Objective

To determine the attitudes of cognitively normal research participants and members of the general public regarding disclosure of AD research results.

Design, setting, and participants

Participants in a longitudinal aging study (Alzheimer Disease Research Center [ADRC]) were given preintervention and postintervention surveys about disclosure attitudes. In a general public sample (The American Panel Survey), participants responded to a similar survey about disclosure attitudes.

In

SUBMITTER: Gooblar J 

PROVIDER: S-EPMC4694568 | biostudies-literature | 2015 Dec

REPOSITORIES: biostudies-literature