TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury.

ABSTRACT:

Objective

To use a patient-centered approach or participatory action research design combined with advanced psychometrics to develop a comprehensive patient-reported outcomes (PRO) measurement system specifically for individuals with traumatic brain injury (TBI). This TBI Quality-of-Life (TBI-QOL) measurement system expands the work of other large PRO measurement initiatives, that is, the Patient-Reported Outcomes Measurement Information System and the Neurology Quality-of-Life measurement initiative.

Setting

Five TBI Model Systems centers across the United States.

Participants

Adults with TBI.

Design

Classical and modern test development methodologies were used. Qualitative input was obtained from individuals with TBI, TBI clinicians, and caregivers of individ

SUBMITTER: Tulsky DS 

PROVIDER: S-EPMC4697960 | biostudies-literature | 2016 Jan-Feb

REPOSITORIES: biostudies-literature