Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned.

ABSTRACT:

Background

Patients and healthcare stakeholders are increasingly becoming engaged in the planning and conduct of biomedical research. However, limited research characterizes this process or its impact.

Objective

We aimed to characterize patient and stakeholder engagement in the 50 Pilot Projects funded by the Patient-Centered Outcomes Research Institute (PCORI), and identify early contributions and lessons learned.

Design

A self-report instrument was completed by researchers between 6 and 12 months following project initiation.

Participants

Forty-seven principal investigators or their designees (94 % response rate) participated in the study. MAIN MEASURES Self-report of types of stakeholders engaged, stages and levels of engagement, facilitators and barriers to

SUBMITTER: Forsythe LP 

PROVIDER: S-EPMC4700002 | biostudies-literature | 2016 Jan

REPOSITORIES: biostudies-literature