Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation.

ABSTRACT:

Objectives

To assess self-reported quality of life (QOL) in a large multicenter cohort of adolescent and young adults surviving Fontan.

Study design

Cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) was administered to 408 survivors of Fontan ages 13-25 years enrolled in the Pediatric Heart Network Fontan Follow-up Study. Subjects also completed either the Child Health Questionnaire (age <19 years) or Short Form Health Survey (age ≥ 19 years). PedsQL data were compared with matched controls without a chronic health condition. Correlations between the measures were examined.

Results

Mean PedsQL scores for subjects receiving Fontan were significantly lower than those for the control group for physical and psychosocial QOL (P < .001). Overall, 45% of subj

SUBMITTER: Uzark K 

PROVIDER: S-EPMC4769899 | biostudies-literature | 2016 Mar

REPOSITORIES: biostudies-literature