Patients' experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey.

ABSTRACT:

Background

We developed a new single point of access to integrated palliative care, respiratory medicine and physiotherapy: the breathlessness support service for patients with advanced disease and refractory breathlessness. This study aimed to describe patients' experiences of the service and identify the aspects valued.

Design

We attempted to survey all patients who had attended and completed the 6-week breathlessness support service intervention by sending them a postal questionnaire to self-complete covering experience, composition, effectiveness of the BSS and about participation in research. Data were analysed using descriptive statistics and thematic analysis of free text comments.

Results

Of the 70 postal questionnaires sent out, 25 (36%) returned. A total of

SUBMITTER: Reilly CC 

PROVIDER: S-EPMC4778380 | biostudies-literature | 2016 Mar

REPOSITORIES: biostudies-literature