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Dataset Information

Adopting genetics: motivations and outcomes of personal genomic testing in adult adoptees.


ABSTRACT:

Purpose

American adult adoptees may possess limited information about their biological families and turn to direct-to-consumer personal genomic testing (PGT) for genealogical and medical information. We investigated the motivations and outcomes of adoptees undergoing PGT using data from the Impact of Personal Genomics (PGen) Study.

Methods

The PGen Study surveyed new 23andMe and Pathway Genomics customers before and 6 months after receiving PGT results. Exploratory analyses compared adoptees' and nonadoptees' PGT attitudes, expectations, and experiences. We evaluated the association of adoption status with motivations for testing and postdisclosure actions using logistic regression models.

Results

Of 1,607 participants, 80 (5%) were adopted. As compared with nonadopte

SUBMITTER: Baptista NM 

PROVIDER: S-EPMC4965328 | biostudies-literature | 2016 Sep

REPOSITORIES: biostudies-literature