The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.

ABSTRACT:

Purpose

Geisinger Health System (GHS) provides an ideal platform for Precision Medicine. Key elements are the integrated health system, stable patient population, and electronic health record (EHR) infrastructure. In 2007, Geisinger launched MyCode, a system-wide biobanking program to link samples and EHR data for broad research use.

Methods

Patient-centered input into MyCode was obtained using participant focus groups. Participation in MyCode is based on opt-in informed consent and allows recontact, which facilitates collection of data not in the EHR and, since 2013, the return of clinically actionable results to participants. MyCode leverages Geisinger's technology and clinical infrastructure for participant tracking and sample collection.

Results

MyCode has a conse

SUBMITTER: Carey DJ 

PROVIDER: S-EPMC4981567 | biostudies-literature | 2016 Sep

REPOSITORIES: biostudies-literature