Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.

ABSTRACT:

Background

The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality criteria for websites about rare diseases are needed.

Objective

The objective of this study was to generate a catalog of quality criteria suitable for rare diseases.

Methods

First, relevant certificates and quality recommendations for health information websites were identified through a comprehensive Web search. Second, all considered quality criteria of each certification program and catalog were examined, extracted into an overview table, and analyzed by thematic content

SUBMITTER: Pauer F 

PROVIDER: S-EPMC5016623 | biostudies-literature | 2016 Aug

REPOSITORIES: biostudies-literature