Parental intentions to enroll children in a voluntary expanded newborn screening program.

ABSTRACT:

Background and objectives

Nearly all babies in the United States are tested at birth for rare, serious, and treatable disorders through mandatory state newborn screening (NBS). Recently, there have been calls for an expanded, voluntary model to facilitate early diagnosis and treatment of a wider range of disorders. We applied the reasoned action framework to examine parental intentions to participate in voluntary expanded screening.

Methods

We recruited a national cohort of recent and expectant parents living in the U.S. who completed a self-administered online survey (N = 1001). Using a mixed-level fractional factorial experiment, we studied parental participation intentions and preferences for timing of consent, cost, consent format, and testing options.

Results

We

SUBMITTER: Paquin RS 

PROVIDER: S-EPMC5023483 | biostudies-literature | 2016 Oct

REPOSITORIES: biostudies-literature