The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers.

ABSTRACT:

Background

The healthcare system is ill-equipped to meet the needs of adults on the autism spectrum.

Objective

Our goal was to use a community-based participatory research (CBPR) approach to develop and evaluate tools to facilitate the primary healthcare of autistic adults.

Design

Toolkit development included cognitive interviewing and test-retest reliability studies. Evaluation consisted of a mixed-methods, single-arm pre/post-intervention comparison.

Participants

A total of 259 autistic adults and 51 primary care providers (PCPs) residing in the United States.

Interventions

The AASPIRE Healthcare toolkit includes the Autism Healthcare Accommodations Tool (AHAT)-a tool that allows patients to create a personalized accommodations report for their PCP-and

SUBMITTER: Nicolaidis C 

PROVIDER: S-EPMC5023610 | biostudies-literature | 2016 Oct

REPOSITORIES: biostudies-literature