Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom.

ABSTRACT:

Purpose

To ascertain whether and how recontacting occurs in the United Kingdom.

Method

A Web-based survey was administered online between October 2014 and July 2015. A link to the survey was circulated via an e-mail invitation to the clinical leads of the United Kingdom's 23 clinical genetics services, with follow-up with senior clinical genetics staff.

Results

The majority of UK services reported that they recontact patients and their family members. However, recontacting generally occurs in an ad hoc fashion when an unplanned event causes clinicians to review a file (a "trigger"). There are no standardized recontacting practices in the United Kingdom. More than half of the services were unsure whether formalized recontacting systems should be implemented. Some sugge

SUBMITTER: Carrieri D 

PROVIDER: S-EPMC5052431 | biostudies-literature | 2016 Sep

REPOSITORIES: biostudies-literature