Patient participation as dialogue: setting research agendas.

ABSTRACT:

Background

Collaboration with patients in healthcare and medical research is an emerging development. We aimed to develop a methodology for health research agenda setting processes grounded in the notion of participation as dialogue.

Methods

We conducted seven case studies between 2003 and 2007 to develop and validate a Dialogue Model for patient participation in health research agenda setting. The case studies related to spinal cord injury, neuromuscular diseases, renal failure, asthma/chronic obstructive pulmonary disease, burns, diabetes and intellectual disabilities.

Results

The Dialogue Model is grounded in participatory and interactive approaches and has been adjusted on the basis of pilot work. It has six phases: exploration; consultation; prioritization; integ

SUBMITTER: Abma TA 

PROVIDER: S-EPMC5060528 | biostudies-literature | 2010 Jun

REPOSITORIES: biostudies-literature