The PRIME project: developing a patient evidence-base.

ABSTRACT:

Background

The concept of evidence has become firmly rooted in health care, with most importance placed on the outcome of research in clinical and economic spheres. Much less emphasis is placed on the patient's contribution to evidence which remains relatively vague, of low status and often difficult to integrate with other forms of knowledge.

Aim

This article proposes a concept of patient-based evidence, to complement clinical and economic forms of evidence, and demonstrates one way in which it has been operationalized. The PRIME project developed a patient evidence-base to capture the lived experience of individuals with myalgic encephalitis (ME) or chronic fatigue syndrome (CFS).

Design

Interviews were performed with 40 individuals with ME/CFS who varied in a range

SUBMITTER: Staniszewska S 

PROVIDER: S-EPMC5060536 | biostudies-literature | 2010 Sep

REPOSITORIES: biostudies-literature