Experiences of informational needs and received information following a prenatal diagnosis of congenital heart defect.

ABSTRACT:

Objective

To explore the need for information and what information was actually received following prenatal diagnosis of a congenital heart defect, in a country where termination of pregnancy beyond 22 weeks of gestation is not easily possible because of legal constraints.

Methods

Twenty-six Swedish-speaking pregnant women (n = 14) and partners (n = 12) were consecutively recruited for semi-structured telephone interviews following the prenatal diagnosis of a congenital heart defect. Data were analyzed using content analysis.

Results

Although high satisfaction with the specialist information was described, the information was considered overwhelming and complex. Objective, honest, and detailed information about multiple subjects were needed, delivered repeatedly, and

SUBMITTER: Carlsson T 

PROVIDER: S-EPMC5074242 | biostudies-literature | 2016 Jun

REPOSITORIES: biostudies-literature