Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.

ABSTRACT: Prospects have never seemed better for a truly global approach to science to improve human health, with leaders of national initiatives laying out their vision of a worldwide network of related projects. An extensive literature addresses obstacles to global genomic data sharing, yet a series of public polls suggests that the scientific community may be overlooking a significant barrier: potential public resistance to data sharing across national borders. In several large United States surveys, university researchers in other countries were deemed the least acceptable group of data users, and a just-completed US survey found a marked increase in privacy and security concerns related to data access by non-US researchers. Furthermore, diminished support for sharing beyond national borders is

SUBMITTER: Majumder MA 

PROVIDER: S-EPMC5091881 | biostudies-literature | 2016 Nov

REPOSITORIES: biostudies-literature