NETS^1HD: study protocol for development of a core outcome set for use in determining the overall success of Hirschsprung's disease treatment.

ABSTRACT:

Background

Use of core outcome sets in research has been proposed as a method for countering the problems caused by heterogeneity of outcome measure reporting. Heterogeneity of outcome measure reporting occurs in Hirschsprung's disease (HD) research and is limiting the development of a robust evidence base to support clinical practice.

Methods

Candidate outcome measures have been identified through a systematic review. These outcome measures will form the starting point for a three-phase online Delphi process to be carried out in parallel by three panels of experts. Panel 1 is a neonatal panel; panel 2 is a non-neonatal panel; and panel 3 is a lay panel. In round 1, experts will be asked to score the previously identified outcome measures from 1 to 9 based on how important t

SUBMITTER: Allin B 

PROVIDER: S-EPMC5141636 | biostudies-literature | 2016 Dec

REPOSITORIES: biostudies-literature