Development and validation of a new patient experience tool in patients with serious illness.

ABSTRACT:

Background

Patients with serious chronic illnesses face increasingly complex care and are at risk of poor experience due to a fragmented health system. Most current patient experience tools are not designed to address the unique care aspects of this population and the few that exist are delivered too late in the disease trajectory and are not administered longitudinally which makes them less useful across settings.

Methods

We developed a new tool designed to address these gaps. The 25 item scale was tested and refined using randomly cross-validated exploratory and confirmatory factor analyses. Participants were not yet hospice eligible but sick enough to receive benefits of a supportive care approach in the last 2 to 3 years of life. Full information maximum likelihood model

SUBMITTER: Fernstrom KM 

PROVIDER: S-EPMC5203706 | biostudies-literature | 2016 Dec

REPOSITORIES: biostudies-literature