Patient involvement in the development of patient-reported outcome measures: a scoping review.

ABSTRACT:

Background

Patient-reported outcome measures (PROMs) measure patients' perspectives on health outcomes and are increasingly used in health care. To capture the patient's perspective, it is essential that patients are involved in PROM development OBJECTIVE: This article reviews in what ways and to what extent patients are involved in PROM development and whether patient involvement has increased over time.

Search strategy

Literature was searched in PubMed, EMBASE, MEDLINE and the Cochrane Methodology Register.

Inclusion criteria

Studies were included if they described a new PROM development.

Data extraction

Basic information and information regarding patient involvement in development phases was recorded.

Main results

A total of 189 studies, describing th

SUBMITTER: Wiering B 

PROVIDER: S-EPMC5217930 | biostudies-literature | 2017 Feb

REPOSITORIES: biostudies-literature