Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study.

ABSTRACT: In paediatric palliative care (PPC), parents are confronted with increasing caregiving demands. More children are cared for at home, and the need for PPC of children is lengthened due to technical and medical improvements. Therefore, a clear understanding of the content of parental caregiving in PPC becomes increasingly important. The objective is to gain insight into parental caregiving based on the lived experience of parents with a child with a life-limiting disease. An interpretative qualitative study using thematic analysis was performed. Single or repeated interviews were undertaken with 42 parents of 24 children with a malignant or non-malignant disease, receiving PPC. Based on their ambition to be a 'good parent', parents caring for a child with a life-limiting disease strived for

SUBMITTER: Verberne LM 

PROVIDER: S-EPMC5321698 | biostudies-literature | 2017 Mar

REPOSITORIES: biostudies-literature